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Tuesday, October 2, 2012

...Abby-something....Abby Normal!





   Our eldest daughter Emily, who will be twenty next week, read and wrote her first word at age two. ("HOT". I still have that slip of paper....somewhere!) She began reading in earnest at age four. So when we sent her off to an all-day preschool program at our little neighborhood Catholic school, we knew she would do just fine. One evening while waiting in the hallway with the other parents for our parent-teacher conference, we all mingled and admired the artwork and writings taped to the walls. The kids had all been instructed to write the same sentence about a school bus, and then do a drawing of a bus to accompany the writing. Their names were on the back of the papers, but I knew instantly which one was Emily's, because I knew her handwriting and drawing styles. One mother noticed that a particular little writer/artist was far advanced of the others, and she said "I wonder who did THIS one?", so she peeled back the corner to reveal Emily's name. Then she turned to look at me, with a rather accusing eye, and said "Oh, you must REALLY work with her, huh?" I said "Um, no. She's just.....like that". There were some other comments by a few more parents, mainly discussion about developmental levels, and by the time we were all walking into the classroom this mom glanced over to me and said, "Huh. Well, I'm just glad my kid's normal!"

  Now, I know you aren't supposed to hold on to negative things like that, but I have never forgotten her words, or the way she said them, or her face when she uttered them. I especially think about them when I'm worried over issues with Georgia, so you can imagine I've been hearing that phrase in my head ALOT lately. Most of you might say "Oh, but what really is 'normal' anyway? NOBODY is 'normal'!" And this may be true. And I am glad of it. But I like to think of "normal" as being zero on a number line (hahaha, look at me using a math analogy! *cough*), and zero is, well, BORING. So what if my kids are -50 and 45,46?! That just means they are infinitely more interesting than normal, boring, stuck-in-the-middle zero! So although there are definitely days when I am feeling low, and wishing that Georgia could be just like her sisters, I hear those words in my head and think "Nope. My kids are awesome just as they are." We are all individuals, and my three girls all learn in very individual ways. They are UNIQUE!



   And as it happens, we discovered at our IEP meeting this morning that there is a "track" we were not aware of which is an option for *unique* kids like Georgia who don't quite fit the mold of our modern educational system. We let the team know that getting her diploma was a secondary concern. It's more important that Georgia keep moving forward at a pace which allows her to build functional skills, to be confident, to enjoy school. And then we heard the words "Graduation Certificate". Magical words. This will essentially let us pick and choose which classes will benefit Georgia, and allow whatever accommodations we need for her. (yes, BUFFET STYLE) It is not a diploma track. No, she will not get any credit towards a High School diploma. But she will be able to "graduate" with her regular class, to walk across the stage, and that is something that will be important to her. When and if we think she is ready to get a GED, then we might pursue that course. In changing to the certificate program, she will be in regular classes, but with the work modified. Her teachers will help highlight only the things they feel she really needs. She will participate in a program that helps teach basic life skills! AND, she'll be part of a group who go to lunch together and eat with typical-functioning kids to model appropriate social interactions. We plan to present these changes to her tonight. Or, as Brad says "Now we gotta sell it to Georgia!" Her schedule will change (AHHH NOT CHANGE!), but it will be for the better.

  But maybe most importantly, our homework load will lighten considerably. Which means we will have time for our Stowell work in the afternoons!!! Georgia's IEP will have to be totally rewritten, so we will meet with the team again next week to finalize and sign all the papers. And even though legally they aren't supposed to implement the changes, everyone has agreed to proceed with her new schedule as if it were a done deal. The relief I feel cannot be measured.

  I'm climbing out of that tiny, dark metal box now, and MAN is it bright out here!



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